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Whatever stage of breast cancer you're in, it's sure to affect your partner, children, parents, and every one else in your immediate family.
Breast cancer is a
family disease. According to the 2001 American Cancer Society
Surveillance Research, each year, 239,300 women in the United
States are diagnosed with in situ or invasive breast cancer. Nearly
57,000 of these women are under the age of 50 (and most have children
that still live at home). Whatever stage of the disease a woman
is in, one thing is certain: Ultimately her breast cancer will
inevitably affect her partner, her children, her parents and every
other member of her immediate family.
Although a woman coping
with cancer deserves and often receives a great deal of support
and attention, her family's needs can get neglected once she gets
caught up in the urgency of researching information, keeping medical
appointments, and making decisions. Instead of being allowed to
complain and blow off steam, family members are expected to be
supportive and helpful. But neglecting their needs can encourage
a husband and children to withdraw, undermining the woman's support
system and leaving her to not only deal with the cancer, but with
family problems too.
The
Ties That Bind
Martin felt helpless and confused when his wife was diagnosed
with cancer because he felt he couldn't take care of her and protect
her from the disease. Like Martin, many men feel helpless, frustrated
and angry when their wives are diagnosed with breast cancer. In
fact, in her book, Cancer and Emotion (1994, John Wiley), Jennifer
Barraclough reported that half of all partners of people diagnosed
with cancer experience significant depression and anxiety, because
they are terrified they will lose their wives. Men's traditional
way of responding problems is to try to fix things. But men cannot
fix a diagnosis of breast cancer. This 'failure' can leave them
feeling helpless, and they may withdraw or become overprotective,
seriously undermining their partners efforts to take care of herself.

Because they can't
find a positive way to help their wives, most husbands tend to
avoid discussion of cancer and minimize its impact on their lives.
Harold says, "Every time my wife talks about cancer, it makes
me feel inadequate, like I need to do something to make her feel
better. I simply change the subject because I don't want her to
dwell on cancer and I don't know what to say."
Women often think this kind of behavior from their husbands means
their husbands don't really care about them. They get the message
they shouldn't talk about their fears; instead they turn to support
groups or female friends.
Working
It Out Together
There are ways for couples to deal with cancer by working together,
instead of letting the disease pull them apart:
Do
A Role' Call:
Make sure your husband has a clear and important role in dealing
with your cancer. He could deal with insurance forms, organize
the children's activities, accompany you to chemotherapy appointments,
or keep family and friends informed.
Talk
the Talk:
Your husband needs to understand it's important for you to talk
about your cancer and its treatment, just as you need to understand
that he might be reluctant to discuss the disease. You both need
to be flexible enough to sometimes talk, and other times just
sit quietly together.
Find
Some Group Support:
Men need to find their own sources of support, whether it is a
friend, a brother, a counselor or a support group. They can also
seek help from such organizations as Men Against Breast Cancer
(www.menagainstbreastcancer.org or 866-547-6222) and Men's Crusade
Against Breast Cancer (http://home.earthlink.net/~rkupbens/mcabc
or 703-978-3336).
Take
Ten:
Men also need some time away from the breast cancer experience
to exercise, go out for breakfast with a friend, or just watch
television.
Kids
Are People Too
Children react to their mother's diagnosis of breast cancer in
many ways, depending on their age, gender, relationship with their
parents, reaction of brothers and sisters, and how well they are
coping with friends, school and other activities. Many young children
get very upset and fear that their mothers may die. Other children
think their parents are invulnerable and are not particularly
upset by their mother's diagnosis. Some children are terrified
by changes in their mother's physical appearance while others
play dress up with her wigs and giggle at her bald head. All of
these reactions are normal.
It's important to
watch for signs of distress in children that shows they need help,
such as acting out, withdrawal, excess crying, extreme irritability,
refusal to attend school, and poor grades. Teachers should also
be made aware of the situation at home. A study by Karen Greening,
reported in the Journal of Psychosocial Oncology (1992), showed
that most young children who have a parent with cancer have five
needs: 1) A need for clear information on what is happening; 2)
a need to be involved and to help out; 3) a need for realistic
reassurance; 4) an opportunity to express their thoughts and feelings;
5) A need to keep up their normal interests and activities. Keeping
those needs in mind can help a child deal with a parent's diagnosis
in a healthy way.
Talking
to Troubled Teens
Teens also react in a variety of ways to news of cancer. Gina,
the 14-year-old daughter of a woman with breast cancer, rarely
left her mother's side, while Gina's 16-year-old brother avoided
his mother and refused to say anything in reaction to her diagnosis.
Discussion of their mother's breasts embarrasses many boys, and
they are likely to avoid their parents and spend more time with
their friends (who they may not even tell about the cancer diagnosis).
They may also withdraw and become quieter than usual. Other boys
mature rapidly after their mother's diagnosis and become very
helpful and protective.
Daughters may identify
with their mothers and may also worry about getting breast cancer
themselves one day. The best way to handle teens is to keep them
informed, without providing too much detail. Give them lots of
reassurance and support, don't pressure them to discuss their
feelings until they're ready, and encourage them to keep up with
friends and activities they enjoy. It's also helpful to give them
a role in helping the family cope with cancer (i.e. helping their
mother keep doctor's appointments, doing research), so that they
feel like a valued and contributing member of the family.

The
Family That Copes Together, Stays Together
Cancer does not occur in a vacuum. When Mary was diagnosed with
breast cancer, her family was already dealing with a child with
attention-deficit disorder and a grandmother with Alzheimer's
disease. Overwhelmed by all their troubles, the family became
immobilized and could not figure out what to do, which made it
difficult for them to get the treatment that Mary needed.
The more stresses
the family is already facing (financial difficulties, a child
with behavioral problems, family conflict, another illness), the
harder the family's ability will be to successfully cope with
cancer. Coping with cancer can be especially trying for couples
who have been recently married or who have young children and
have not yet developed the personal resources they need to cope
with cancer.
The
good news: Most families do find a way to cope
successfully with cancer. In fact, many couples become closer
as a result of fighting cancer together. Sandra Haber, Ph.D, in
Breast Cancer: A Psychological Treatment Manual (1993, Division
of Independent Practice of the American Psychological Association),
concluded that cancer pre-cipitated a divorce in only 7% of the
marriages affected by it. Studies show it is usually people diagnosed
with cancer who initiate talk of divorce in a marriage with long-standing
difficulties, wanting life to be as rewarding as possible for
their partner. Families can face the disease together by following
these suggestions:
- Make
time to talk, not only about cancer, but about other problems
and triumphs in the family.
- Ask
for help with the children, managing the home and other practical
aspects of life that can get neglected.
- Try
to maintain as normal a life as possible.
- Make
time for enjoyment and relaxation and remember to express your
love for each other.
Although breast cancer
impacts the entire family, that impact can surprisingly lead to
increased strength and closeness. Taking the time to listen, support
and love each other and to accept different reactions, can go
a long way toward helping the family triumph over breast cancer
and lead fulfilling lives once more. 


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